“mama”deus | miami photographer
the other day i heard the song “Amadeus, Amadeus” and it reminded me of how i always changed the lyrics to “Mamadeus, Mamadeus”. just thinking about it makes me smile and think of my mom.
8 years ago on June 1st, 2003 i woke up to a reality that i always feared. lupus won.
My mother was diagnosed with lupus when I was in 6th grade but I never really understood what lupus was. People would ask me and i would answer, “it’s an autoimmune disease, it’s kinda like cancer, you treat it with chemo BUT it’s not cancer”. How did i know it was an autoimmune disease? Cuz i read it on a pamphlet my mom had on her nightstand. I still have it. I can’t throw it away.
I can sit here and write about what an incredible mom she was BUT everyone’s mom is incredible.
My sister and I were lucky enough to have had a “second” chance with my mom. After 13 my mom was with us until I turned 25. I was able to get to know her as an adult. I was able to ask her questions about things a 13 year-old would have never asked. I was blessed to have that time and truly not take it for granted. My mother was all the things a mom should be: pretty perfect!
I wish she would’ve met my frank, my joey and my “nana”. I wish she could’ve gone shopping with me for baby clothes. I wish she could still tell me that I’m not wearing enough makeup.
Mamadeus, you are much loved and greatly missed!